Education, Health and Care (EHC) plans for children and young people aged up to 25 were introduced on 1 September 2014 as part of the Special Educational Needs and Disability (SEND) provisions in the Children and Families Act 2014. An (EHC) plan is available for…
Monday - Friday 9.00am-4.30pm. Closed on public holidays
Spinal Muscular Atrophy Support UK offers free information and support, via phone and email, to anyone diagnosed with Spinal Muscular Atrophy (SMA), their family members or friends, health and other professionals in the UK. We do not provide medical advice but we can answer your…
STEPS is a national charity providing support, information and practical advice to anyone affected by clubfoot/talipes, hip dysplasia and other lower limb conditions. They provide an online discussion forum on their website and also provide a Family Contact Service where they can put individuals/families in…
The White HouseGreenalls AvenueWarringtonCheshireWA4 6HL
We donate funds to children suffering from arthritis, scoliosis, brittle bone disease, bone cancer and all other conditions of the bone. Applicants must be under the age of 21. We provide grants for medical equipment, wheelchairs, computers & software, respite breaks at our holiday homes,…
Unit B9 Seedbed Centre,Davidson WayRomfordEssexRM7 0AZ
SUDEP Action is a reporting and support centre for epilepsy deaths and provides: Support to individuals who have been affected by an epilepsy related death; Counselling Information to help with understanding the investigation and cause of death; Opportunity to be involved in research into epilepsy…
We work with and support young carers across the UK, providing practical and emotional support to ensure they enjoy and achieve, just like their peers. Young carers aren't going to stop caring. But we can help give them a break to learn and have fun,…
Approximately 6,000 children are born in the UK each year with a syndrome without a name – a genetic condition so rare that it is often impossible to diagnose. Our Big Ambition here at SWAN UK is that each of these families will have the…
Appointments can be arranged to meet individual needs
We work collaboratively across a range of settings including special educational needs (SEN) and mainstream schools, social and residential services, to provide wrap around and coordinated support directly to children and young people and to those who support them (parents, carers, teachers, service staff). …
We’re a lifeline for families who care for seriously ill children. We want to make sure our helpline and support services are always there for families, especially at this frightening and lonely time. Families need us more than ever. Family Support: Cri du Chat Syndrome…