Unique - The Rare Chromosome Disorder
Having a child with a rare chromosome disorder can be a huge shock and can stir up a whole range of emotions and a great desire to learn more about your child's disorder. Most of us who help run the group have been through these experiences and know how you are feeling. Most parents' first reaction, quite understandably, is to "find" another, older child with the same disorder as their child. While this might be possible for some, it still does not mean that the two children will develop in the same way. However, just talking to other parents with a child with a rare chromosome disorder can be a great relief and can help to alleviate feelings of isolation and "why me?"
As part of its services, Unique runs a telephone and email helpline for new and existing member families and professionals to find out more information about the group and about specific rare chromosome disorders. For more information, get in touch.
Who to contact
- Telephone
- Helpline: 01883 723 356 Helpline: 01883 723 356
- Website
- Unique
- Social Media
- Follow us on Twitter Find us on Facebook Follow us on Instagram
Where to go
- Name
- The Rare Chromosome Disorder Support Group
- Address
-
G1 The Stables,
Station Road West
Oxted
Surrey - Postcode
- RH8 9EE
- View RH8 9EE on a map Get directions to RH8 9EE
Last Updated
Last updated: 08/12/2022